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A Fatherís Day Tribute from a Genetic Disorder Warrior
In celebration of Fatherís Day, a daughter shares how the powerful example set by a father is helping her fight against a deadly diagnosis.


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The example presented by great fathers can have a positive lifetime impact.


I am convinced that his mindset and determination are why he is still knocking it out of the park today.”
As Fatherís Day approaches, many of us take time to contemplate just how powerful the paternal influence can be. For good or for ill, the lessons fathers teach impact their children for the rest of their lives. My own father was not only a great dad, but his unmatchable fortitude taught me how to overcome incredible odds and survive my own devastating illness.

Six years ago, I was diagnosed with the gene for Huntingtonís disease, a hereditary illness that presents like a combination of Alzheimerís, Parkinsonís, and schizophrenia combined. John Mattinson, my father, who also has HD, has been diagnosed for 25 years, but also had symptoms for many years prior.

Even in the face of an illness like Huntingtonís disease, he has been a rock for my entire family. While most people with HD die within 10-15 years of a diagnosis, my father is a champion. I am convinced that his mindset and determination are why he is still knocking it out of the park today. I credit following his example to my ongoing good health despite living with the same diagnosis.

John Leslie Mattinson is 78 years old. After receiving his HD diagnosis at 53 years old, he continued on with his life as if nothing had changedórunning the family farm until age 74 when he and my mom relocated to a nearby city. Through it all, he has never been depressed or discouraged, and though he is now "retired," he still looks for adventure and ways to contribute right where he is. My fatherís persevering spirit and can-do attitude are the factors that have kept him going strong.

My dad gives people with Huntingtonís disease a different way to experience it, to look at it, to understand it. People need to realize that they can still live graciously with their illnesses and imperfections and that they donít have to succumb to depression, apathy, or resentment. They can still have a happy life.

My father raised me to be flexible, adaptable, curious, and gracious about accepting things you cannot change. These attributes come in handy as I work hard to manifest a life free from HD symptoms. These tenets, along with exercise, healthy diet, and a giant dose of positivity, are instilled in every part of my life.

If everyone could adopt the best qualities from their dads (and moms) and leave the rest behind, then we would perpetually be improving the world.

“Children need to learn that adults are human and they make mistakes.”

In honor of Fatherís Day, I want to share what makes my dad my champion in hopes of inspiring other sons and daughters everywhere to thank their dads and become strong, character-driven adults (and parents) themselves. Read on for a list of qualities that is the stuff of great fathersóbased on my own fatherís example.

Great dads are not afraid to hug and kiss. Great fathers are not afraid to show affection to their family members. Children (even adult children) still need to feel love from both parents, and that love should be expressed in a physical way.

Dad still hugs us when we arrive. He meets me and the kids at the dooróusually with my wonderful momóand we all get a big hug to let us know weíre loved. We get shaken a bit from the hug, due to Dadís HD chorea (involuntary movement), but itís great that he shows us he loves us.

They live their lives with honesty and integrity. In order to be able to count on parents, there must be a solid foundation of trust. Many children today live with frequent disappointment due to their parentsí inconsistent words and behaviors. Honesty is an integral component to creating a secure environment for children to grow up in.

He is truthfulóand he has been throughout his entire life. I could always take my dadís words and behavior to the proverbial bank.

They are self-starters. Apathy and a lack of insight are often the first symptoms of HD, but my father motivates himself to get daily exercise, contributes to household chores, and manages the yard work. Heís tenacious and has always inspired me to keep going when times get tough.

They respect and revere the natural world. He and Mom taught me to have reverence for living things, like baby ducks and bunnies. There was even a fawn Dad once found in the field and brought to us to look at, to touch, to marvel at its amazingness. He is a gentle man.

Great dads donít hide from life. Hard times are going to happen, but a good father keeps going when things get tough. My fatherís illness hasnít stopped him from going out into the community and carrying on with his life in spite of the HD chorea, which causes him to shake uncontrollably. Despite all this, he has a twinkle in his eye and carries on being an active member of the community.

He has accepted his physical body, shakes and all, and is still engaging and funny with other people when he meets them. He plays crib every week and has a ton of friends. They canít hear each other as well as they once used to, but that sure doesnít stop them from getting together both for visiting and support through illnesses and lifeís other challenges after age 75.

They admit their wrongs. Apologizing when you are wrong is so, so important. My dad does. Children need to learn that adults are human and they make mistakes. Saying youíre sorry in front of your children and to your children teaches them how to behave. It shows that being wrong is not the worst thing in the world and that humility is a valuable trait to possess.

They are great husbands or partners. Good fathers support not only their children, but their wives or partners as well. A partnership based on mutual respect, trust, and love is a formula for happinessóand helps ensure that those values carry over to the next generation. Fathers should remember that their children are always watching and imitating. So a father who is loving to his wife or partner teaches children to treat others with respect and love.

My dad always treats my mom with love and affection. He loves my mom to the moon and back and has for 50 years. When he talks about her, he gets teary because he just thinks she is the most amazing woman in the world.

They show up for their loved ones. Just being there is the most important thing a father can do. Kids donít want or need a perfect dadóthey just need a dad who is there to guide and support them.

Dad loves all his grandkids and cares deeply about everyoneís happiness. He always shows up for their hockey games and dance recitals or teaches them about woodworking and how to care for plants and animals. They will always know that their grandfather loves them.

As Fatherís Day approaches, I hope that all dads and those who have dads (everyone, really) will contemplate the unconditional love that fathers feel for their children. Fatherhood is a precious gift, and having a great father is a real blessing.

Perhaps the greatest lesson my dad has taught me is this: Enjoy life to the fullest. Enjoy this moment. Enjoy the simple things like growing plants and experimenting with new recipes. Hang out and have coffee with your friends; just turn up the hearing aids. Help each other out when you can.

If it snows, Dad is still over helping to shovel at his friendsí and neighborsí homes. He sees what needs others have and figures out how to be of help to them. He is considerate, thoughtful, and has a huge heart, along with huge hands! As Tim McGrawís hit song describes, he is "humble and kind." I cannot think of a better example for how to live my life.

Leaha Mattinson, author of "Silver Linings," is using her professional training as a life coach and change management specialist to develop a mental and physical regimen to stop the onset of Huntingtonís disease. She has helped thousands of individuals find solutions to their personal problems and works with CEOs and senior managers to build leaders, address issues of workplace conflict, and ensure positive change. Leaha†is beating the odds through proven, simple "wellness strategies" that anyone can achieve. She shares her strategies in her book and on her website at www.changeyourlife.expert.


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